Role
Principal Officer, Rare Diseases & Rehabilitation Policy Unit
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From: Department of Health
- Published on: 9 April 2024
- Last updated on: 30 January 2025
Responsibility for the development of a new Rare Disease Strategy for Ireland including supporting the National Rare Disease Steering Group and the Rare Disease Patient forum; oversight of the implementation of the interim Model of Care for Long COVID; and engagement with the HSE’s National Rare Disease Office and relevant stakeholders on the development of rare disease services in Ireland.