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Report on the Newborn Screening Card Archive Forum
From Department of Health
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The Department of Health hosted the Newborn Screening Card Archive Forum on 27 October 2016, with the aim of providing participants from a broad range of areas with the opportunity to engage in deliberative dialogue with international experts regarding the current and future retention and secondary uses of the Newborn Screening Card Archive.
The retention of Newborn Screening Cards collected indefinitely prior to 30 June 2011 without consent is unlawful.
The Report on the Newborn Screening Card Archive Forum is a record of the proceedings and sets out the key issues and themes including views from the international speakers and the participants.
The department will take into consideration the themes raised in the Forum’s Report as part of their deliberations to seal the data protection breach.
Report on the Newborn Screening Card Archive Appendices nos. 1 – 3
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