Role
Principal Officer, Rare Diseases & Long Covid Policy
From Department of Health
Published on
Last updated on
From Department of Health
Published on
Last updated on
Responsibility for the development of a new Rare Disease Strategy for Ireland including supporting the National Rare Disease Steering Group and the Rare Disease Patient forum; oversight of the implementation of the interim Model of Care for Long COVID; and engagement with the HSE’s National Rare Disease Office and relevant stakeholders on the development of rare disease services in Ireland.