Róil
Principal Officer, Rare Diseases & Long Covid Policy
Foilsithe
An t-eolas is déanaí
Teanga: Níl leagan Gaeilge den mhír seo ar fáil.
Foilsithe
An t-eolas is déanaí
Teanga: Níl leagan Gaeilge den mhír seo ar fáil.
Responsibility for the development of a new Rare Disease Strategy for Ireland including supporting the National Rare Disease Steering Group and the Rare Disease Patient forum; oversight of the implementation of the interim Model of Care for Long COVID; and engagement with the HSE’s National Rare Disease Office and relevant stakeholders on the development of rare disease services in Ireland.